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The Dana-Farber Young-Onset Colorectal Cancer; Interview With Dr. Kimmie Ng and Pat Beauregard


The Dana-Farber Young-Onset Colorectal Cancer; Interview With Dr. Kimmie Ng and Pat Beauregard

Dr. Kimme Ng and Pat Beauregard

The Dana-Farber Cancer Institute opened the doors to its new Young-Onset Colorectal Cancer Center this past week. In anticipation of this exciting news I interviewed Dr. Kimmie Ng, Founding Director, and young-onset survivor, Pat Beauregard.

During our interview we discussed:

  • The goals of the Dana-Farber Young-Onset Colorectal Cancer and why it was created.
  • How Pat came to be diagnosed with Young-Onset Colorectal Cancer at the age of 29
  • The challenges in raising awareness around young-onset colorectal cancer and how it often leads to a late-stage diagnosis.
  • The three main areas of focus of the center
  • Where Pat currently is with his treatment

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Links Mentioned In the Show

Dana-Farber Young-Onset Colorectal Cancer Center – https://www.dana-farber.org/young-onset-colorectal-cancer-center/

Dr. Kimmie Ng – https://www.dana-farber.org/find-a-doctor/kimmie-ng/

Connect with Pat on Facebook – https://www.facebook.com/pat.beauregard.79

Follow Pat on Instagram – https://instagram.com/pbo15

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Advocacy and Faith Has Helped Carole Motycka Outlive Her Initial Cancer Prognosis


Carole Motycka – WE Have Cancer

In our first episode supporting 2019 Colon Cancer Awareness Month, Carole Motycka talks about how advocacy and faith has helped her far outlive her doctor’s initial prognosis.

During this interview we talked about:

  • How a minor hiking accident led to her diagnosis of stage 4 colon cancer and Juvenile Polyposis Syndrome (JPS).
  • Her doctors giving her a 6-11 month prognosis, three years ago.
  • The treatment and support she received from the Cleveland Clinic.
  • Why she needed a liver transplant after doctors finding No Evidence of Disease.
  • How a liver donor was found and her relationship with this fellow church member.
  • The role her faith played in her diagnosis, recovery and her life going forward.

Connect With Carole

Instagram: https://instagram.com/swtcareline

 

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The Big Surprise


Host Lee Silverstein, shares surprising news and it’s definitely not the surprise he was expecting.

 

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Surviving Cancer Through Faith, Love and Writing With Nicole Body


Nicole Body – WE Have Cancer

Nicole Body has been surviving cancer through faith, love and passion for writing. A Stage 3 sarcoma survivor, Nicole chronicled her cancer experience through her blog; sparklysurvivor.com.

During our conversation we discussed:

  • How she came to be diagnosed
  • The importance of exercise and the role it plays in her cancer recovery
  • Why presence and not taking things for granted is incredibly important to her
  • Why she chose to leave social media during her treatment and focus on writing
  • The important role her husband, Wes, has played in her life and her cancer experience
  • The crucial role her faith plays in her life and in her recovery
  • How she handles friends and family who “don’t know what to say” when it comes to cancer
  •  The poor relationship she had with food and how she overcame it and became more focused on nutrition

Connect with Nicole

Her blog – https://sparklysurvivor.com/

On Instagramhttps://instagram.com/sparklysurvivor

On Twitterhttps://twitter.com/sparklysurvivor

On Pinteresthttps://pinterest.com/sparklysurvivor

On Facebook – https://www.facebook.com/SparklySurvivor/

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

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Rehabbing From Cancer, With 9-Year Survivor Michele Longabaugh


Michele Longabaugh is a 9-year stage 4 cancer survivor. She was diagnosed in 2010 with anal cancer and has far exceeded her 3-year “expiration date,” as she described it.

During our conversation we discussed:

  • The challenging treatment she went through
  • The stigma associated with anal cancer
  • The long term side effects of her treatments and how she’s managing them
  • What she meant when she said “I wish they would have treated me like I was going to survive.”
  • Why she feels like she’s now “living the dream” as a cancer survivor.
  • The fact that many oncologists and surgeons fail to address the impact of cancer on the sexual function of cancer survivors and patients and how she’d like this to change.
  • How she wishes patients would be offered “cancer rehab.”
  • How surviving cancer has changed her.

Links Mentioned In The Show

Interview with Dr. Sage Bolte – https://wehavecancershow.com/069

52 Shades of Blue – http://www.52shadesofblue.com

Michele’s book If You’re Not Laughing, You’re Dying – http://www.52shadesofblue.com/her-book/#

Follow Michele

Her blog – http://ihavebuttwhat.tumblr.com

On Instagram – https://instagram.com/pollyannalife

On Twitter – https://twitter.com/crazyasscancer

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest

Email Lee

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A Routine Colonoscopy Saved His Life, With John Cavanaugh


Dr. John Cavanaugh

A Routine Colonoscopy Saved His Life, With John Cavanaugh

in May of 2014 John Cavanaugh was diagnosed with colon cancer after a routine colonoscopy.

John’s story was profiled in this Colon Cancer Coalition’s Faces of Blue article.

On my 50th birthday, I promised my wife I would make an appointment for a full physical. On May 5, 2014, my primary physician, Dr. Troy Fate, MD scheduled a routine colonoscopy. I had two polyps removed and one turned out to be cancerous with positive margins. After a consultation with Dr. Scott Brill, a Colon and Rectal Surgeon at Ohio Health in Columbus, we elected for surgery on June 6th (Lilly’s birthday). Dr. Brill found no evidence of cancer in the section removed, but one lymph node out of 13 tested positive for cancer cells. One of the risks of my operation was the possibility of a leak. Unfortunately, that occurred and I fell ill with sepsis which required a second emergency surgery. Luckily Dr. Brill is an Army Veteran with trauma experience so he was able to save my life. I needed two additional procedures to install drains for fluid build up near my lungs. My wife never left my side for a month and slept next to me on a recliner (Much like the scene where Robin Williams describes the meaning of love to Matt Damon on the park bench in Good Will Hunting).

After a several rounds of antibiotics, I recovered enough to be discharged from the hospital with a temporary ileostomy. After three weeks of intensive physical and occupational therapy at home, I was able to participate in our daughter’s wedding ceremony. Then I endured several months of chemotherapy that made me look like the main character from “Unbroken”. In December, right before my birthday and the Christmas holidays, Dr. Brill reversed the diversion and I spent much of 2015 recuperating. On May 5, 2015, Dr. Brill performed a colonoscopy which resulted in a normal finding. Later in December, I had a CT scan and received a clean bill of health. I continued to be followed closely by my oncologist with regular blood screening, but am now back to work full-time.

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Links Mention In This Episode:

The Colon Cancer Coalition:  https://coloncancercoalition.org

Cancer + Careers: https://www.cancerandcareers.org/en

WE Have Cancer Links

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Follow us on Twitter – https://twitter.com/wehavecancerpod
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Know someone touched by cancer who has an inspiring story?

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Charles Griffin Jr. Copes With His Stage IV Cancer Through Faith and Positivity

Charles Griffin Jr.

Charles Griffin Jr. Copes With His Stage IV Cancer Through Faith and Positivity

Charles Griffin, Jr. was diagnosed with stage IV colon cancer at the age of 32. Shortly after, he discovered the Colon Cancer Alliance through their Facebook group COLONTOWN. It opened his eyes to the wonderful community of support for those impacted by this disease! Read his story below. 

In my 34 years of life, I’ve earned a reputation for being a do-it-all kind of guy. I’m a husband to my college sweetheart Britni, a father to our four young daughters, a former college football star, an avid golfer, a motivational speaker, a YouTube entertainer and a novice screenwriter.  My name is Charles Griffin Jr. and I never thought I would be a stage IV colon cancer patient. I’m reaching out to you today to ask you to join me in supporting the Colon Cancer Alliance. Two years ago, I suffered excruciating abdominal pain while playing golf. With no family history and no additional symptoms, I had to beg my doctor for a colonoscopy which revealed a golf ball-size tumor in my colon. Further testing showed the cancer had metastasized with multiple tumors to my lungs and liver. I was in the prime of my life with a beautiful family and a budding career when I got the worst news imaginable. I had stage IV colon cancer. Shortly thereafter, I discovered the Colon Cancer Alliance through their Facebook group Colontown. It opened my eyes to the wonderful community of support for those of us impacted by this disease. But now that I’m two years into my treatment, I’m eager for a cure, or at least treatment options that aren’t as taxing on my body. That’s why I support the Colon Cancer Alliance and their deep commitment to colon cancer-specific research. The Colon Cancer Alliance has taken an even bolder stance on research going forward, committing publicly to grow its investment in colorectal cancer-specific research to $10 million by 2021. Research that could ultimately save my life. I’m proud that the Colon Cancer Alliance is on the cutting-edge, exploring immunotherapy, biomarkers and personalized medicine. In 2016 alone, the Colon Cancer Alliance, in partnership with the Never Too Young Coalition, funded two grants to help researchers explore young-onset colorectal cancer in an attempt to better understand why people under the age of 50, like myself, are being diagnosed with this devastating disease. This is where you come in. Through your generous donation, the Colon Cancer Alliance will be able to expand its funding for life-saving and innovative research, putting us closer to realizing our vision of eliminating colon cancer in our lifetime. With your support, there will be a future for me and the thousands of other colon cancer patients waiting for a cure. Please give today. I am the reason Tomorrow Can’t Wait. Click here to listen to me tell my story.

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Fred and Heather Schiller Are Coping With Cancer Through Love


What an honor it is to share episode #100 with you. Never did I realize when I launched the podcast 3 1/2 years ago that I would someday be talking about such a milestone.

I could not think of a better way to celebrate this important episode than by sharing Heather and Fred’s story.

I met them at Fight CRC’s annual Call-on Congress earlier this year. Heather serves as an ambassador for Fight CRC. Their story touched me in so many ways. During this interview we discussed Heather’s wonderful progress in her clinical trial. When I saw Heather during our Skype interview – which was conducted in May, 2018 – I almost didn’t recognize her; she looked that good!

The three of us also discussed the impact has on a marriage and how they’ve relied on their love for each other, and their faith, to cope with Heather’s disease.

Links Mentioned in This Episode of WE Have Cancer

Heather’s One Million Strong story: https://fightcolorectalcancer.org/blog/meet-one-million-strong-heather-schiller-georgia/

FightCRC: https://fightcolorectalcancer.org/

Follow Heather on Twitter: https://twitter.com/tisHeather

Follow Heather on Instagram: https://instagram.com/tisHeather

Follow Fred on Instagram: https://instagram.com/fs_7phoenix

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Losing Fear In The Face of Cancer, With Jessica Buscho

Jessica Buscho

Losing Fear In The Face of Cancer, With Jessica Buscho

Jessica is currently undergoing treatment for Stage IV colon cancer. Despite the fact that her symptoms were dismissed by doctors for years, she approaches life with positivity and gratitude. During our conversation we discussed how her cancer diagnosis has been the impetus behind her living a life less driven by fear and more focused on presence.

One of the guides that has helped Jessica navigate her disease is the book Radical Remission: Surviving Cancer Against All Odds by Kelly Turner, Ph.D.

 

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Honoring Her Husband’s Memory Through Her Advocacy Work, With Dana Georges

Dana Georges

Honoring Her Husband’s Memory Through Her Advocacy Work, With Dana Georges

I had the pleasure of meeting Dana at the 12th annual Call-on Congress.

She became very involved in cancer advocacy efforts after losing her husband Jean to colon cancer on Mother’s Day, 2015. He was only 43-years-old. Her 7-year-old  son will need to begin screening at age 25. Also, her32-year-old brother recently had precancerous cells found in a polyp that was discovered during a colonoscopy due to rectal bleeding.

Since her husband’s passing, she has been to Capital Hill twice to meet with her federal  lawmakers in an effort to increase funds for cancer research. She also focuses on meeting with her state and local lawmakers throughout the year. In addition to her advocacy work with Fight CRC, she also works with The American Cancer Society’s Cancer Action Network.


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