Tag Archives | Chemotherapy

Why Cancer Patients Should Advocate For Their Care, With Maureen Famiano


Why Cancer Patients Should Advocate For Their Care, With Maureen Famiano

Maureen Famiano

Maureen Famiano was originally diagnosed with Colorectal Cancer in 2010. Six weeks after colon resection surgery she learned her cancer had spread to her lymph nodes. During our conversation we discussed:

  • Why asking questions of your doctor and advocating for your care is so important.
  • The specific questions to ask your doctor after a cancer diagnosis.
  • The complications she experienced after her treatment and the choices she needed to make.
  • Why she chose to get a 2nd, 3rd and 4th opinion and why the 4th opinion was her best option.
  • How she evaluated her treatment options, including a possible permanent ostomy, and what she ultimately decided on.
  • The lifestyle changes she was required to make moving forward.

 

Links Mentioned In the WE Have Cancer Podcast

Connect with Maureen on Facebook – https://www.facebook.com/maureen.famiano

WE Have Cancer Links

Subscribe to the WE Have Cancer Podcast – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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Living The Role of The Cancer Caregiver, With Kandis Draw

Living The Role of The Cancer Caregiver, With Kandis Draw

Kandis Draw

Kandis’ mother succumbed to cancer in 2014. Not only was she her mother’s caregiver she also was charged with caring for her younger siblings. During this time she was literally burning the candle at both ends. During our conversation we discussed:

  • How she wished she knew of the resources available to support her during such a difficult time in her life.
  • The importance of reaching out to people in similar situations as a source of support.
  • The importance of self-care when serving as a caregiver and the enormous challenges she faced while caring for both her sick mother and her younger siblings.
  • How her relationship with with her mother blossomed during her illness.
  • The stigma in the African-American community around going to psycho-therapy and what motivated her to seek support.
  • How she coped with her mother’s passing.

Links Mentioned In the WE Have Cancer Podcast

Therapy For Black Girls – https://www.therapyforblackgirls.com/

Follow Kandis on Instagram – https://instagram.com/kandi_koated

WE Have Cancer Links

Subscribe to the WE Have Cancer Podcast – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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Interview With Stage 4 Rectal Cancer Patient Christy Lorio


Interview With Stage 4 Rectal Cancer Patient Christy Lorio

Christy Lorio

*** Please note – Just prior to publishing this episode, Christy emailed me to inform me that she’d just learned that her cancer had returned and had metastasized to her lungs.
In 2017 while traveling in Ireland, Christy had a seizure. The doctors traced the source of the seizure to a tumor in her brain which had metastasized from her rectum. She was 37 years old and had stage 4 rectal cancer.
During our conversation we discussed:
  • Her experience attending colorectal cancer conferences and cancer “camps”
  • How cancer impacts the control one has over their life
  • How she came to be diagnosed
  • The importance of exercise in her life
  • How her cancer impacted her marriage

Links Mentioned In the WE Have Cancer Podcast

WE Have Cancer Links

First Descents – https://firstdescents.org/
The Cassie Hinds Shoe Cancer Foundation – https://www.cassiehinesshoescancer.org/about/cassies-story/
Follow Christy on Instagram – https://instagram.com/christylorio
Follow Christy on Twitter – https://twitter.com/christylorio

Subscribe to the WE Have Cancer Podcast – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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When Cancer Returns After Being Cured

In 2005 Wendi was diagnosed with stage 3 metastatic ovarian cancer. She also tested positive for the BRCA 1 gene. After treatment, which included a hysterectomy and prophylactic double mastectomy, she was pronounced “cured” after five years.
Early in 2019, after 14 years her cancer returned. During our conversation we discussed:
  • How a case of appendicitis led to the diagnosis of her cancer recurrence.
  • The challenges she now faces with the metastasis to her peritoneum.
  • HIPEC as an option for treatment of her cancer recurrence.
  • The long-term side effects of her initial treatment and how it’s impacted her life.
  • How her cancer recurrence has impacted decisions on her life moving forward.
  • How turning to her faith has brought her comfort.

Links Mentioned In the WE Have Cancer Podcast

Connect with Wendi – http://wendicooper.com/

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

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Know someone touched by cancer who has an inspiring story?

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What Cancer Taught A Disaster Psychologist About Faith and Resilience


What Cancer Taught A Disaster Psychologist About Faith and Resilience

Dr. Jamie Aten

Dr. Jamie Aten is the Founder and Executive Director of the Humanitarian Disaster Institute and Chair of Humanitarian and Disaster Leadership at Wheaton College. A survivor of colorectal cancer, he’s also the author of  A Walking Disaster: What Surviving Katrina and Cancer Taught Me About Faith and Resilience.

During our conversation we discussed:

  • How Terror Management theory explains why some people struggle to support those going through traumatic experiences like cancer.
  • How he struggled to ask for help during his treatment and how he overcame this challenge.
  • Redefining “strengths” and “weaknesses.”
  • How growing up in a small, blue collar town impacted his view of the world and his career choice.
  • How he came to be diagnosed with colon cancer in 2014.
  • Why those touched by cancer should be cautious of optimism.
  • How Post-Traumatic Stress Disorder (PTSD) can affect cancer patients.

Links Mentioned In the WE Have Cancer Podcast

Jamie’s book, A Walking Disaster: What Surviving Katrina and Cancer Taught Me About Faith and Resiliencehttps://www.amazon.com/Walking-Disaster-Surviving-Resilience-Spirituality-ebook/dp/B07M6QL56C/ref=sr_1_1?crid=1ZRLYE0B9A1PN&keywords=a+walking+disaster+by+jamie+aten&qid=1571591927&sprefix=a+walking+dis%2Caps%2C170&sr=8-1

CancerToday article, Coping With Traumahttps://www.cancertodaymag.org/Pages/cancer-talk/Coping-With-Trauma.aspx

Humanitarian Disaster Institute – https://www.wheaton.edu/academics/academic-centers/humanitarian-disaster-institute/

Lotsa Helping Hands – https://lotsahelpinghands.com/

Follow Jamie on Twitter – https://twitter.com/drjamieaten

Follow Jamie on Instagram – https://instagram.com/drjamieaten

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

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Know someone touched by cancer who has an inspiring story?

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Diagnosed With Stage 4 Bile Duct Cancer, But Focused On Hope


Chris Lawrence was diagnosed with stage 4 Bile Duct Cancer, but focused on hope.

Chris Lawrence – WE Have Cancer

In the spring of 2016 Chris Lawrence was diagnosed with stage 4 Bile Duct cancer. While laying in his hospital bed, his father wrote “Hope Has Arrived” on the whiteboard. Thus the non-profit organization hopehasarrived.com was born.

During our conversation we discussed:

  • How Chris came to be diagnosed with stage 4 Bile Duct cancer.
  • Why he created Hope Has Arrived
  • The decision to move back to Sioux Falls, South Dakota, where he was originally from
  • How Genomic Sequencing saved his life
  • His thoughts on the future of his health
  • The future plans for Hope Has Arrived
  • The important role that his faith plays in his life
  • The positive things that he’s experienced since his diagnosis

Links Mentioned In the WE Have Cancer Podcast

WE Have Cancer Links

Hope Has Arrived – https://www.hopehasarrived.com/

Hope Has Arrived on Facebook – https://www.facebook.com/hopehasarrived/

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

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Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
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Know someone touched by cancer who has an inspiring story?

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Fear of a Cancer Recurrence; An Emotional Conversation With Courtney Forget


Courtney Forget & Bagel Man

A cancer recurrence is every cancer survivors greatest fear. In her return visit to the WE Have Cancer podcast, Courtney Forget talks intimately about this fear. We also discussed:

  • How she went from looking forward to her ileostomy reversal – as discussed in Episode 43 – to loving her life with a permanent ostomy.
  • Living with the constant fear of a cancer recurrence after having two “cancer scares.”
  • The importance of getting second, and even third, opinions.
  • Her thoughts on being naive about her initial diagnosis and how she looks at her survivorship today.
  • Why she’s not a fan of ringing the bell at her cancer center after completing treatment.
  • The role her husband has played as her cancer caregiver.
  • The reason she adopted a Greyhound dog and why she’s training him to be a therapy dog.
  • The challenge of moving to a new city and finding a new Oncologist.

Links Mentioned In the WE Have Cancer Podcast

Courtney’s first appearance on the Colon Cancer (WE Have Cancer) podcast – https://wehavecancershow.com/043

Pet Partners – https://petpartners.org/

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

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Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

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Interview With Two-Time Cancer Survivor Howard Brown


Howard Brown was first diagnosed with cancer – Non-Hodgkins Lymphoma – at the age of 24. When he turned 50, a routine colonoscopy revealed stage 3 colon cancer.

During our conversation we discussed:

  • The numerous treatments, including HIPEC, and clinical trials he’s been through.
  • His experience as an an attendee of the 2019 American Association of Cancer Research (AACR) conference.
  • How his twin sister saved his life from stage 4 Non-Hodgkins Lymphoma.
  • The possible link between childhood and young adult cancers to adult cancers.
  • His experience being treated with Hyperthermic Intraperitoneal Chemotherapy (HIPEC)
  • What his cancer experience has taught him about himself.
  • How exercise has helped him physically and emotionally.
  • His thoughts, and mine, on healthy eating.

Links Mentioned In the Show

Stacy Hurt – https://stacyhurt.net/

AACR – https://www.aacr.org/Pages/Home.aspx

Gentle Yoga With Jean DiCarlo Wagner – https://Wehavecancershow.com/019

Colontown – https://colontown.org/colontown-intake-form/

Belong.Life App – https://belong.life/

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

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Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

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Stage 4 Melanoma; Summers Spent Tanning Nearly Cost Her Her Life; With Becca Pendarvis

Becca and Brooklyn Pendarvis

As a teenager growing up in Kansas, Becca Pendarvis spent her summers doing everything she could to get as tan as possible. Now a mother of a sixteen year-old daughter, she has spent the last seven years dealing with Stage 4 Melanoma skin cancer.

During our conversation we discussed:

  • Why she loves living in New York City and how living there helped her cope with her cancer.
  • The common misconceptions about Skin Cancer.
  • How to use A-B-C-D-E to identify possible skin cancers.
  • The fact that she’s now N.E.D. (No Evidence of Disease) after initially being told she had 9 – 18 months to live.
  • The impact her illness had on her daughter.
  • Camp Kesem – a nationwide community that supports the children of parents affected by cancer – and how it helped her daughter.
  • Her thoughts on tanning and tanning beds.

Links Mentioned In the Show

Camp Kesem – https://campkesem.org/

Know the ABCDEs of Skin Cancer – https://www.skincancer.org/skin-cancer-information/melanoma/melanoma-warning-signs-and-images/do-you-know-your-abcdes

Follow Becca on Instagram –  https://instagram.com/beccalovesbrooklyn

Follow Becca on Twitter – https://twitter.com/beccapendarvis

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

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Learning How to Simplify Cancer With Joe Bakhmoutski


Joe Bakhmoutski – WE Have Cancer

Joe Bakhmoutski was diagnosed with Testicular cancer in 2016.He founded Simplify Cancer  to provide support and advice to those touched by cancer. During our conversation we discussed:

  • Why he created Simplify Cancer
  • How he came to be diagnosed with Testicular cancer
  • How people perceive various cancers and how some are deemed “embarrassing”
  • What patients can do to prepare for their first oncologist appointment and the free tool he offers on his website to assist with this.
  • The book he’s writing to help men dealing with cancer.

Links Mentioned in the Show

Simplify Cancer – http://simplifycancer.com/

Joe’s Interview With Lee Silverstein On the Simplify Cancer podcast – http://simplifycancer.com/ep055/

Follow Simplify Cancer on Instagram – https://instagram.com/simplify_cancer

Follow Simplify Cancer on Twitter – https://mobile.twitter.com/simplifycancer

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

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