Tag Archives | Cancer

Why Cancer Patients Should Advocate For Their Care, With Maureen Famiano


Why Cancer Patients Should Advocate For Their Care, With Maureen Famiano

Maureen Famiano

Maureen Famiano was originally diagnosed with Colorectal Cancer in 2010. Six weeks after colon resection surgery she learned her cancer had spread to her lymph nodes. During our conversation we discussed:

  • Why asking questions of your doctor and advocating for your care is so important.
  • The specific questions to ask your doctor after a cancer diagnosis.
  • The complications she experienced after her treatment and the choices she needed to make.
  • Why she chose to get a 2nd, 3rd and 4th opinion and why the 4th opinion was her best option.
  • How she evaluated her treatment options, including a possible permanent ostomy, and what she ultimately decided on.
  • The lifestyle changes she was required to make moving forward.

 

Links Mentioned In the WE Have Cancer Podcast

Connect with Maureen on Facebook – https://www.facebook.com/maureen.famiano

WE Have Cancer Links

Subscribe to the WE Have Cancer Podcast – https://pod.link/wehavecancer

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Living The Role of The Cancer Caregiver, With Kandis Draw

Living The Role of The Cancer Caregiver, With Kandis Draw

Kandis Draw

Kandis’ mother succumbed to cancer in 2014. Not only was she her mother’s caregiver she also was charged with caring for her younger siblings. During this time she was literally burning the candle at both ends. During our conversation we discussed:

  • How she wished she knew of the resources available to support her during such a difficult time in her life.
  • The importance of reaching out to people in similar situations as a source of support.
  • The importance of self-care when serving as a caregiver and the enormous challenges she faced while caring for both her sick mother and her younger siblings.
  • How her relationship with with her mother blossomed during her illness.
  • The stigma in the African-American community around going to psycho-therapy and what motivated her to seek support.
  • How she coped with her mother’s passing.

Links Mentioned In the WE Have Cancer Podcast

Therapy For Black Girls – https://www.therapyforblackgirls.com/

Follow Kandis on Instagram – https://instagram.com/kandi_koated

WE Have Cancer Links

Subscribe to the WE Have Cancer Podcast – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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Tatiana Suarez; Her Story of Conquering Cancer and Winning In the UFC


Tatiana Suarez; Her Story of Conquering Cancer and Winning In the UFC

Tatiana Suarez

Tatiana Suarez started wrestling when she was three years’ old. Right before she was to compete in the 2012 Olympics in London, she was diagnosed with Thyroid Cancer. During our conversation we discussed:

  • Why she got into wrestling at such a young age.
  • How she came to be diagnosed with thyroid cancer
  • Her reaction to missing out on the London Olympics due to her thyroid cancer
  • How she found faith just prior to her diagnosis
  • Her discovery of holistic medicine at a young age
  • How the removal of her thyroid has impacted her
  • How cancer changed her life and brought her closer to her family
  • Her love of competition

Follow Tatiana Suarez

Follow Tatiana Suarez on Instagram – https://www.instagram.com/tatianasuarezufc/

Follow Tatiana Suarez on Twitter – https://twitter.com/tatianaufc

Like Tatiana Suarez’ Facebook page – https://www.facebook.com/TatianaSuarezPadillaMMA/

WE Have Cancer Links

Subscribe to the WE Have Cancer Podcast – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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Interview With Stage 4 Rectal Cancer Patient Christy Lorio


Interview With Stage 4 Rectal Cancer Patient Christy Lorio

Christy Lorio

*** Please note – Just prior to publishing this episode, Christy emailed me to inform me that she’d just learned that her cancer had returned and had metastasized to her lungs.
In 2017 while traveling in Ireland, Christy had a seizure. The doctors traced the source of the seizure to a tumor in her brain which had metastasized from her rectum. She was 37 years old and had stage 4 rectal cancer.
During our conversation we discussed:
  • Her experience attending colorectal cancer conferences and cancer “camps”
  • How cancer impacts the control one has over their life
  • How she came to be diagnosed
  • The importance of exercise in her life
  • How her cancer impacted her marriage

Links Mentioned In the WE Have Cancer Podcast

WE Have Cancer Links

First Descents – https://firstdescents.org/
The Cassie Hinds Shoe Cancer Foundation – https://www.cassiehinesshoescancer.org/about/cassies-story/
Follow Christy on Instagram – https://instagram.com/christylorio
Follow Christy on Twitter – https://twitter.com/christylorio

Subscribe to the WE Have Cancer Podcast – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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When Cancer Returns After Being Cured

In 2005 Wendi was diagnosed with stage 3 metastatic ovarian cancer. She also tested positive for the BRCA 1 gene. After treatment, which included a hysterectomy and prophylactic double mastectomy, she was pronounced “cured” after five years.
Early in 2019, after 14 years her cancer returned. During our conversation we discussed:
  • How a case of appendicitis led to the diagnosis of her cancer recurrence.
  • The challenges she now faces with the metastasis to her peritoneum.
  • HIPEC as an option for treatment of her cancer recurrence.
  • The long-term side effects of her initial treatment and how it’s impacted her life.
  • How her cancer recurrence has impacted decisions on her life moving forward.
  • How turning to her faith has brought her comfort.

Links Mentioned In the WE Have Cancer Podcast

Connect with Wendi – http://wendicooper.com/

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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What Cancer Taught A Disaster Psychologist About Faith and Resilience


What Cancer Taught A Disaster Psychologist About Faith and Resilience

Dr. Jamie Aten

Dr. Jamie Aten is the Founder and Executive Director of the Humanitarian Disaster Institute and Chair of Humanitarian and Disaster Leadership at Wheaton College. A survivor of colorectal cancer, he’s also the author of  A Walking Disaster: What Surviving Katrina and Cancer Taught Me About Faith and Resilience.

During our conversation we discussed:

  • How Terror Management theory explains why some people struggle to support those going through traumatic experiences like cancer.
  • How he struggled to ask for help during his treatment and how he overcame this challenge.
  • Redefining “strengths” and “weaknesses.”
  • How growing up in a small, blue collar town impacted his view of the world and his career choice.
  • How he came to be diagnosed with colon cancer in 2014.
  • Why those touched by cancer should be cautious of optimism.
  • How Post-Traumatic Stress Disorder (PTSD) can affect cancer patients.

Links Mentioned In the WE Have Cancer Podcast

Jamie’s book, A Walking Disaster: What Surviving Katrina and Cancer Taught Me About Faith and Resiliencehttps://www.amazon.com/Walking-Disaster-Surviving-Resilience-Spirituality-ebook/dp/B07M6QL56C/ref=sr_1_1?crid=1ZRLYE0B9A1PN&keywords=a+walking+disaster+by+jamie+aten&qid=1571591927&sprefix=a+walking+dis%2Caps%2C170&sr=8-1

CancerToday article, Coping With Traumahttps://www.cancertodaymag.org/Pages/cancer-talk/Coping-With-Trauma.aspx

Humanitarian Disaster Institute – https://www.wheaton.edu/academics/academic-centers/humanitarian-disaster-institute/

Lotsa Helping Hands – https://lotsahelpinghands.com/

Follow Jamie on Twitter – https://twitter.com/drjamieaten

Follow Jamie on Instagram – https://instagram.com/drjamieaten

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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Interview With Two-Time Cancer Survivor Howard Brown


Howard Brown was first diagnosed with cancer – Non-Hodgkins Lymphoma – at the age of 24. When he turned 50, a routine colonoscopy revealed stage 3 colon cancer.

During our conversation we discussed:

  • The numerous treatments, including HIPEC, and clinical trials he’s been through.
  • His experience as an an attendee of the 2019 American Association of Cancer Research (AACR) conference.
  • How his twin sister saved his life from stage 4 Non-Hodgkins Lymphoma.
  • The possible link between childhood and young adult cancers to adult cancers.
  • His experience being treated with Hyperthermic Intraperitoneal Chemotherapy (HIPEC)
  • What his cancer experience has taught him about himself.
  • How exercise has helped him physically and emotionally.
  • His thoughts, and mine, on healthy eating.

Links Mentioned In the Show

Stacy Hurt – https://stacyhurt.net/

AACR – https://www.aacr.org/Pages/Home.aspx

Gentle Yoga With Jean DiCarlo Wagner – https://Wehavecancershow.com/019

Colontown – https://colontown.org/colontown-intake-form/

Belong.Life App – https://belong.life/

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

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Know someone touched by cancer who has an inspiring story?

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Why Getting a 2nd and 3rd Opinion Made a Difference In Her Cancer Treatment, With Sasha Denisova


Sasha Denisova – WE Have Cancer

 
Seeking out a 2nd and 3rd opinion in her cancer treatment resulted in a dramatic improvement in Sasha Denisova’s quality of life.

Sasha first appeared on this podcast in Episode 83 where she shared the struggle she faced getting doctors to take her colorectal cancer symptoms seriously.

During our latest conversation she discussed why she made the decision to forego treatment at the Mayo Clinic in Minnesota to seek treatment at Memorial Sloan Kettering in New York City. We also discussed:

  • How she got the courage to challenge the initial treatment recommendations made by her doctor and why it’s important for everyone to advocate for their best care.
  • The importance 0f seeking out opinions from the top rated cancer facilities in the U.S.
  • How she eased herself back into working out in the gym and why working with a guided fitness instructor was important.
  • Why exercise is vital to her well-being and how most cancer patients can find an exercise routine that works for them.

Learn More About Sasha’s Story

Faces of Blue: Sasha Denisova UPDATE | Colon Cancer Coalition

Today is my expiration day. I smiled as I jumped out of bed and made myself a cup of coffee. I’m starting the day with my usual run with my two dogs. The world around us is still asleep. As we run down the dark wooded path, I am reflecting on the last 18 months.

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

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The World’s Okayest Cyclist; Beating Cancer Through Faith and Exercise with Shawn Watson


Shawn Watson

In the fall of 2013, Shawn Watson was diagnosed with Stage 4 Lymphoma. Shawn credits his faith and passion for exercise, specifically cycling for helping him recover from his diagnosis. During our conversation we discussed:

  • How he went from barely being able to walk 300 steps in a day to cycling up to 100 miles.
  • The role his faith has played in his recovery.
  • His thoughts on how anyone can use exercise in their cancer recovery.
  • Why he refers to himself as The world’s okayest cyclist.
  • Why it’s important to him to build a community and help others.
  • How he got into public speaking by reaching out to the manufacturer of one of the drugs used in his treatment.
  • How he has dealt with people who “don’t know what to say.”
  • The smartphone apps he uses to track his exercise and keep him motivated.

Links Mentioned In the Show

Amgen Break Away From Cancer – https://www.breakawayfromcancer.com/
The Conqueror Events/My Virtual Mission – https://www.theconqueror.events/

Connect With Shawn

On Instagram – https://instagram.com/worlds_okayest_cyclist

On Twitter – https://twitter.com/okayestcyclist

His blog – https://worldsokayestcyclist.wordpress.com/

 

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

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Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

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Discussing the Long-Term Effects of Childhood Cancer Treatment With Susan Strong


Susan Strong was first diagnosed with cancer shortly after graduating high school when she was diagnosed with Hodgkin’s Lymphoma at the age of 17. Like many childhood cancer survivors she was unaware of the health complications she would face many years later, including heart-valve replacement surgery and a breast cancer diagnosis, as a result of her treatment for her Lymphoma.

During our conversation she shared:

  • The emotional struggle she faced as a childhood cancer patient.
  • How she coped with both a heart-valve replacement and breast cancer diagnosis within a short time period.
  • Why she decided to walk away from her career as a classroom teacher and pursue her passion.
  • The advocacy and support work she’s doing for cancer patients and survivors and her long-term goals.
  • How post-traumatic stress disorder (PTSD) manifested itself and how she managed its effects.

Connect With Susan, Links Mentioned on the Show

Check out her blog – https://stronglifenow.wixsite.com/stronglifenow

The American Heart Association’s profile on Susan – https://newsarchive.heart.org/strong-to-celebrate-her-valversary/

Follow Susan on Instagram – https://instagram.com/livinglifeafterlymphoma

Follow Susan on YouTube – https://www.youtube.com/playlist?list=PLBw9pWNLQth953VjT48qlnRGiZECCbjj9

Have Susan speak to your organization – https://speakerhub.com/speaker/susan-strong

National Cancer Institute, Cancer Screening – https://www.cancer.gov/about-cancer/screening/patient-screening-overview-pdq

TAVR (Transcatheter aortic valve replacement) – https://www.mayoclinic.org/tests-procedures/transcatheter-aortic-valve-replacement/about/pac-20384698

EMDR (Eye Movement Desensitization and Reprocessing) – https://www.emdr.com/what-is-emdr/

 

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

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