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Living An Active Life With An Ostomy; With Colorectal Cancer Survivor Doug Dahlmann


Doug Dahlman

Doug Dahlmann leads a very active life despite his ostomy. That wasn’t always the case; however. When he awoke from his surgery for stage 3 colorectal cancer in 2010 he was devastated to learn he was left with a permanent ostomy. He was “filled with anxiety, depression and uncertainty.”

Adjusting to life as an ostomate took time, but within a few months he achieved his goal of completing a 100-mile century bike ride.

During our interview we covered:

  • Why he wanted to take on the physical challenge of hiking the Pacific Crest Trail and the unique challenges doing so with an ostomy.
  • The emotional challenge of accepting his ostomy and how he moved from “denial” to embracing his new life.
  • Navigating the social and dating scene with an ostomy.
  • Why he decided to compete in a body-building competition.
  • What’s next for him on his list of adventures.

Connect with Doug

His story featured on the Colon Cancer Coalition website: https://coloncancercoalition.org/2018/10/06/an-ostomy-life-unlimited/

On Instagram – https://instagram.com/pacnwtrekker

On Facebook – https://www.facebook.com/doug.dallmann

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The Dana-Farber Young-Onset Colorectal Cancer; Interview With Dr. Kimmie Ng and Pat Beauregard


The Dana-Farber Young-Onset Colorectal Cancer; Interview With Dr. Kimmie Ng and Pat Beauregard

Dr. Kimme Ng and Pat Beauregard

The Dana-Farber Cancer Institute opened the doors to its new Young-Onset Colorectal Cancer Center this past week. In anticipation of this exciting news I interviewed Dr. Kimmie Ng, Founding Director, and young-onset survivor, Pat Beauregard.

During our interview we discussed:

  • The goals of the Dana-Farber Young-Onset Colorectal Cancer and why it was created.
  • How Pat came to be diagnosed with Young-Onset Colorectal Cancer at the age of 29
  • The challenges in raising awareness around young-onset colorectal cancer and how it often leads to a late-stage diagnosis.
  • The three main areas of focus of the center
  • Where Pat currently is with his treatment

WE Have Cancer Links

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Links Mentioned In the Show

Dana-Farber Young-Onset Colorectal Cancer Center – https://www.dana-farber.org/young-onset-colorectal-cancer-center/

Dr. Kimmie Ng – https://www.dana-farber.org/find-a-doctor/kimmie-ng/

Connect with Pat on Facebook – https://www.facebook.com/pat.beauregard.79

Follow Pat on Instagram – https://instagram.com/pbo15

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Advocacy and Faith Has Helped Carole Motycka Outlive Her Initial Cancer Prognosis


Carole Motycka – WE Have Cancer

In our first episode supporting 2019 Colon Cancer Awareness Month, Carole Motycka talks about how advocacy and faith has helped her far outlive her doctor’s initial prognosis.

During this interview we talked about:

  • How a minor hiking accident led to her diagnosis of stage 4 colon cancer and Juvenile Polyposis Syndrome (JPS).
  • Her doctors giving her a 6-11 month prognosis, three years ago.
  • The treatment and support she received from the Cleveland Clinic.
  • Why she needed a liver transplant after doctors finding No Evidence of Disease.
  • How a liver donor was found and her relationship with this fellow church member.
  • The role her faith played in her diagnosis, recovery and her life going forward.

Connect With Carole

Instagram: https://instagram.com/swtcareline

 

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The Big Surprise


Host Lee Silverstein, shares surprising news and it’s definitely not the surprise he was expecting.

 

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The Colon Club – Providing Support and Healing to Those Touched By Colorectal Cancer

The Colon Club – WE Have Cancer

The guests for this episode were Phoung Ly Gallagher, Executive Vice President, and Kristina Smith, Vice President of Communications for The Colon Club.  The Colon Club provides resources for those touched by colorectal cancer.

During our conversation we discussed:

  • The story behind the beginning of The Colon Club
  • The Colon Club’s Four pillars: Colon Talk, The Kimberly Fund, the blog and the On The Rise magazine.
  • Kristina’s own experience as a recipient of The Kimberly Fund
  • Phuong’s connection to colorectal cancer
  • The upcoming Colon Camp retreat and the life-changing experiences attendees can expect.

Apply to Attend the 2019 Colon Camp – Deadline is February 1, 2019!

To apply visit: https://wehavecancershow.com/colonclub

Links Mentioned In This Episode

Colon Club – http://colonclub.com

Colon Talk – http://coloncancersupport.colonclub.com/viewforum.php?f=1

The Kimberly Fund – https://colondar.wufoo.com/forms/r1lbim8y1rxx58x/

On The Rise Magazine – http://colonclub.com/on-the-rise/

Our First Interview With Kristina Smith – https://wehavecancershow.com/054

Our Interview With Diana Sloan – https://wehavecancershow.com/077

Our Interview With Riley Castro – https://wehavecancershow.com/061

Our Interview With Nikki Moore – https://wehavecancershow.com/090

The Five Star Retreat In Nunnelly, Tennessee – http://www.fivestarretreat.com

Connect With The Colon Club

On Instagram – https://instagram.com/colonclub

On Twitter – https://twitter.com/colonclub

On Facebook – https://www.facebook.com/colonclub/

Visit Their Website – http://colonclub.com

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

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Interview With 15 yr. Cancer Survivor and Passionate Advocate Candace Henley


Candace first appeared on the podcast back in 2015. You can listen to that interview here.

Much has changed in Candace’s life since then. During our conversation we discussed:

  • How her life has changed 15 years since her original diagnosis.
  • The alarming number of questions she is asked during her advocacy work that reflect many people’s lack of knowledge about their own bodies.
  • The advocacy work she is doing, along with Dr. Andrew Albert, in the Chicago area.
  • The growth of her non-profit, The Blue Hat Foundation.
  • The reason why many people of color are distrustful of the medical community.

Links mentioned in this episode

The Blue Hat Foundation – https://www.thebluehatfoundation.org/

Call On Congress – https://fightcolorectalcancer.org/events/save-the-date-call-on-congress-2019/

Candace on Instagram – https://www.instagram.com/penelopepit_stop/

Candace on Twitter – https://twitter.com/colon_survivor

The Blue Hat Foundation on Twitter – https://twitter.com/BlueHats4colons

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest
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A Routine Colonoscopy Saved His Life, With John Cavanaugh


Dr. John Cavanaugh

A Routine Colonoscopy Saved His Life, With John Cavanaugh

in May of 2014 John Cavanaugh was diagnosed with colon cancer after a routine colonoscopy.

John’s story was profiled in this Colon Cancer Coalition’s Faces of Blue article.

On my 50th birthday, I promised my wife I would make an appointment for a full physical. On May 5, 2014, my primary physician, Dr. Troy Fate, MD scheduled a routine colonoscopy. I had two polyps removed and one turned out to be cancerous with positive margins. After a consultation with Dr. Scott Brill, a Colon and Rectal Surgeon at Ohio Health in Columbus, we elected for surgery on June 6th (Lilly’s birthday). Dr. Brill found no evidence of cancer in the section removed, but one lymph node out of 13 tested positive for cancer cells. One of the risks of my operation was the possibility of a leak. Unfortunately, that occurred and I fell ill with sepsis which required a second emergency surgery. Luckily Dr. Brill is an Army Veteran with trauma experience so he was able to save my life. I needed two additional procedures to install drains for fluid build up near my lungs. My wife never left my side for a month and slept next to me on a recliner (Much like the scene where Robin Williams describes the meaning of love to Matt Damon on the park bench in Good Will Hunting).

After a several rounds of antibiotics, I recovered enough to be discharged from the hospital with a temporary ileostomy. After three weeks of intensive physical and occupational therapy at home, I was able to participate in our daughter’s wedding ceremony. Then I endured several months of chemotherapy that made me look like the main character from “Unbroken”. In December, right before my birthday and the Christmas holidays, Dr. Brill reversed the diversion and I spent much of 2015 recuperating. On May 5, 2015, Dr. Brill performed a colonoscopy which resulted in a normal finding. Later in December, I had a CT scan and received a clean bill of health. I continued to be followed closely by my oncologist with regular blood screening, but am now back to work full-time.

Want your holiday greeting shared on an upcoming podcast episode? Call (813) 434-3215 and leave a short holiday greeting to a friend or loved one.

Links Mention In This Episode:

The Colon Cancer Coalition:  https://coloncancercoalition.org

Cancer + Careers: https://www.cancerandcareers.org/en

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

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How One Person Can Influence Favorable Cancer Legislation, With Michael Holtz


How One Person Can Influence Favorable Cancer Legislation, With Michael Holtz

Michael Holtz is a 6 1/2 year survivor of Stage IIIB rectal cancer and is the author of the book It’s Not Harder Than Cancer. Michael first appeared on this podcast in 2015. You can listen to that interview here.

Michael and I discussed the cancer advocacy work he’s been doing with the American Cancer Society and as the Tennessee state representative for the American Cancer Society’s Cancer Action Network – ACS CAN.

In April 2018 the Provision CARES Foundation recognized Michael Holtz as the Patient Advocate of the Year.

 

Links Mentioned In The Show

Michael Holtz’ website – http://www.michaelholtzonline.com/

Michael on Facebook – https://facebook.com/michaelandrewholtz/

Michael on Twitter – https://twitter.com/michaelholtz

It’s Not Harder Than Cancer – Available on Amazon

 

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Charles Griffin Jr. Copes With His Stage IV Cancer Through Faith and Positivity

Charles Griffin Jr.

Charles Griffin Jr. Copes With His Stage IV Cancer Through Faith and Positivity

Charles Griffin, Jr. was diagnosed with stage IV colon cancer at the age of 32. Shortly after, he discovered the Colon Cancer Alliance through their Facebook group COLONTOWN. It opened his eyes to the wonderful community of support for those impacted by this disease! Read his story below. 

In my 34 years of life, I’ve earned a reputation for being a do-it-all kind of guy. I’m a husband to my college sweetheart Britni, a father to our four young daughters, a former college football star, an avid golfer, a motivational speaker, a YouTube entertainer and a novice screenwriter.  My name is Charles Griffin Jr. and I never thought I would be a stage IV colon cancer patient. I’m reaching out to you today to ask you to join me in supporting the Colon Cancer Alliance. Two years ago, I suffered excruciating abdominal pain while playing golf. With no family history and no additional symptoms, I had to beg my doctor for a colonoscopy which revealed a golf ball-size tumor in my colon. Further testing showed the cancer had metastasized with multiple tumors to my lungs and liver. I was in the prime of my life with a beautiful family and a budding career when I got the worst news imaginable. I had stage IV colon cancer. Shortly thereafter, I discovered the Colon Cancer Alliance through their Facebook group Colontown. It opened my eyes to the wonderful community of support for those of us impacted by this disease. But now that I’m two years into my treatment, I’m eager for a cure, or at least treatment options that aren’t as taxing on my body. That’s why I support the Colon Cancer Alliance and their deep commitment to colon cancer-specific research. The Colon Cancer Alliance has taken an even bolder stance on research going forward, committing publicly to grow its investment in colorectal cancer-specific research to $10 million by 2021. Research that could ultimately save my life. I’m proud that the Colon Cancer Alliance is on the cutting-edge, exploring immunotherapy, biomarkers and personalized medicine. In 2016 alone, the Colon Cancer Alliance, in partnership with the Never Too Young Coalition, funded two grants to help researchers explore young-onset colorectal cancer in an attempt to better understand why people under the age of 50, like myself, are being diagnosed with this devastating disease. This is where you come in. Through your generous donation, the Colon Cancer Alliance will be able to expand its funding for life-saving and innovative research, putting us closer to realizing our vision of eliminating colon cancer in our lifetime. With your support, there will be a future for me and the thousands of other colon cancer patients waiting for a cure. Please give today. I am the reason Tomorrow Can’t Wait. Click here to listen to me tell my story.

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Fred and Heather Schiller Are Coping With Cancer Through Love


What an honor it is to share episode #100 with you. Never did I realize when I launched the podcast 3 1/2 years ago that I would someday be talking about such a milestone.

I could not think of a better way to celebrate this important episode than by sharing Heather and Fred’s story.

I met them at Fight CRC’s annual Call-on Congress earlier this year. Heather serves as an ambassador for Fight CRC. Their story touched me in so many ways. During this interview we discussed Heather’s wonderful progress in her clinical trial. When I saw Heather during our Skype interview – which was conducted in May, 2018 – I almost didn’t recognize her; she looked that good!

The three of us also discussed the impact has on a marriage and how they’ve relied on their love for each other, and their faith, to cope with Heather’s disease.

Links Mentioned in This Episode of WE Have Cancer

Heather’s One Million Strong story: https://fightcolorectalcancer.org/blog/meet-one-million-strong-heather-schiller-georgia/

FightCRC: https://fightcolorectalcancer.org/

Follow Heather on Twitter: https://twitter.com/tisHeather

Follow Heather on Instagram: https://instagram.com/tisHeather

Follow Fred on Instagram: https://instagram.com/fs_7phoenix

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Facebook: https://www.facebook.com/wehavecancershow/

Twitter: https://twitter.com/wehavecancerpod

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