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Surviving Cancer Through Faith, Love and Writing With Nicole Body


Nicole Body – WE Have Cancer

Nicole Body has been surviving cancer through faith, love and passion for writing. A Stage 3 sarcoma survivor, Nicole chronicled her cancer experience through her blog; sparklysurvivor.com.

During our conversation we discussed:

  • How she came to be diagnosed
  • The importance of exercise and the role it plays in her cancer recovery
  • Why presence and not taking things for granted is incredibly important to her
  • Why she chose to leave social media during her treatment and focus on writing
  • The important role her husband, Wes, has played in her life and her cancer experience
  • The crucial role her faith plays in her life and in her recovery
  • How she handles friends and family who “don’t know what to say” when it comes to cancer
  •  The poor relationship she had with food and how she overcame it and became more focused on nutrition

Connect with Nicole

Her blog – https://sparklysurvivor.com/

On Instagramhttps://instagram.com/sparklysurvivor

On Twitterhttps://twitter.com/sparklysurvivor

On Pinteresthttps://pinterest.com/sparklysurvivor

On Facebook – https://www.facebook.com/SparklySurvivor/

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

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Rehabbing From Cancer, With 9-Year Survivor Michele Longabaugh


Michele Longabaugh is a 9-year stage 4 cancer survivor. She was diagnosed in 2010 with anal cancer and has far exceeded her 3-year “expiration date,” as she described it.

During our conversation we discussed:

  • The challenging treatment she went through
  • The stigma associated with anal cancer
  • The long term side effects of her treatments and how she’s managing them
  • What she meant when she said “I wish they would have treated me like I was going to survive.”
  • Why she feels like she’s now “living the dream” as a cancer survivor.
  • The fact that many oncologists and surgeons fail to address the impact of cancer on the sexual function of cancer survivors and patients and how she’d like this to change.
  • How she wishes patients would be offered “cancer rehab.”
  • How surviving cancer has changed her.

Links Mentioned In The Show

Interview with Dr. Sage Bolte – https://wehavecancershow.com/069

52 Shades of Blue – http://www.52shadesofblue.com

Michele’s book If You’re Not Laughing, You’re Dying – http://www.52shadesofblue.com/her-book/#

Follow Michele

Her blog – http://ihavebuttwhat.tumblr.com

On Instagram – https://instagram.com/pollyannalife

On Twitter – https://twitter.com/crazyasscancer

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

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The Colon Club – Providing Support and Healing to Those Touched By Colorectal Cancer

The Colon Club – WE Have Cancer

The guests for this episode were Phoung Ly Gallagher, Executive Vice President, and Kristina Smith, Vice President of Communications for The Colon Club.  The Colon Club provides resources for those touched by colorectal cancer.

During our conversation we discussed:

  • The story behind the beginning of The Colon Club
  • The Colon Club’s Four pillars: Colon Talk, The Kimberly Fund, the blog and the On The Rise magazine.
  • Kristina’s own experience as a recipient of The Kimberly Fund
  • Phuong’s connection to colorectal cancer
  • The upcoming Colon Camp retreat and the life-changing experiences attendees can expect.

Apply to Attend the 2019 Colon Camp – Deadline is February 1, 2019!

To apply visit: https://wehavecancershow.com/colonclub

Links Mentioned In This Episode

Colon Club – http://colonclub.com

Colon Talk – http://coloncancersupport.colonclub.com/viewforum.php?f=1

The Kimberly Fund – https://colondar.wufoo.com/forms/r1lbim8y1rxx58x/

On The Rise Magazine – http://colonclub.com/on-the-rise/

Our First Interview With Kristina Smith – https://wehavecancershow.com/054

Our Interview With Diana Sloan – https://wehavecancershow.com/077

Our Interview With Riley Castro – https://wehavecancershow.com/061

Our Interview With Nikki Moore – https://wehavecancershow.com/090

The Five Star Retreat In Nunnelly, Tennessee – http://www.fivestarretreat.com

Connect With The Colon Club

On Instagram – https://instagram.com/colonclub

On Twitter – https://twitter.com/colonclub

On Facebook – https://www.facebook.com/colonclub/

Visit Their Website – http://colonclub.com

WE Have Cancer Links

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Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest

Email Lee

Dean Hall Is A Cancer Survivor Who’s Swimming In Miracles


Dean Hall is Swimming In Miracles

Dean Hall is the first person in history to swim the entire 184 miles of Oregon’s Willamette River. He accomplished this feat in June of 2014 while he still had active leukemia and lymphoma to prove to cancer patients around the world that you don’t have to give up your dreams or your drive simply because you received a diagnosis. Now, cancer-free he continues to go to great lengths to raise money for cancer research and spread his inspirational message of healing and hope around the world.

During our interview we discussed:

  • How cancer played a significant part of his life before his diagnosis.
  • The meaning of Swimming in Miracles and how water has played a significant role in his physical and emotional healing.
  • How a quote from Albert Einstein helped him chart a new course with his life.
  • The role faith has played in his life.

Connect With Dean

His website, Swimming in Miracleshttps://www.swimminginmiracles.com

On Instagram: https://instagram.com/swimminginmiracles

On Twitter: https://twitter.com/swimminginmiracles

Links mentioned in the show

Forest bathinghttp://www.shinrin-yoku.org/shinrin-yoku.html

Wim Hofhttps://www.wimhofmethod.com

The book Blue Mindhttps://www.amazon.com/Blue-Mind-Surprising-Healthier-Connected/dp/0316252115

WE Have Cancer Links

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Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest

Email Lee

Lee@wehavecancershow.com

 

Lyfebulb – A Patient Platform That Embraces and Stimulates Innovation Toward Better Quality of Life


Dr. Karin Hehenberger – CEO/Co-Founder, Lyfebulb

Dr. Karin Hehenberger, is the CEO and Co-Founder of Lyfebulb, an organization whose mission is to “Reduce the burden of chronic disease through the power of the patient.”

In our conversation we discussed:

  • The origin and goals of Lyfebulb since its inception in 2014.
  • How her own diagnosis with Type 1 Diabetes at the age of 16 and subsequent kidney and pancreas transplants impacted her and the mission and goals of Lyfebulb.
  • The roles of Patient Ambassadors and Patient Entrepreneurs.
  • Why Lyfebulb is a patient-centric organization.
  • The upcoming Lyfebulb-Helsinn Innovation Challenge.
  • The future of Lyfebulb.

Apply For the Lyfebulb-Helsinn Innovation Challenge – https://lyfebulb.com/innovation-award/helsinn-2019/

Connect With Lyfebulb

Visit their website – https://lyfebulb.com/

Lyfebulb on Instagram – https://instagram.com/lyfebulb

Lyfebulb on Twitter – https://twitter.com/lyfebulb 

Lyfebulb on Facebook – https://www.facebook.com/Lyfebulb

Lyfebulb on YouTube – https://www.youtube.com/user/Lyfebulb

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Powered by Hope; An Interview With Ironman Triathlete and Stage IV Cancer Survivor Teri Griege


Teri Griege

In 2009, shortly after completing her first Ironman Triathalon, Teri Griege was diagnosed with Stage IV colon cancer. She was 48 years old.

During our conversation we discussed:

  • How her diagnosis saved the lives of her two older sisters.
  • Her setting a goal to complete a half Ironman one year after her diagnosis and how she trained for this during her cancer treatments.
  • Completing six major marathons around the world.
  • Her book, Powered by Hope and the non-profit she created by the same name.
  • Her advocacy work with Pedal the Cause, the Colorectal Cancer Alliance and Fight CRC.

Links Mentioned In The Show

Teri’s website – http://terigriege.com/

Powered by Hope – https://www.poweredbyhope.org/

Pedal the Cause – https://www.pedalthecause.org/

Colorectal Cancer Alliance – https://www.ccalliance.org/

Fight CRC – https://fightcolorectalcancer.org/

Call On Congress – https://fightcolorectalcancer.org/events/save-the-date-call-on-congress-2019/

Colon Cancer Coalition – https://coloncancercoalition.org/

Teri’s Story

[youtube https://www.youtube.com/watch?v=5VFar8mSujU]

Connect With Teri

Facebook: https://www.facebook.com/teri.griege

Twitter: https://twitter.com/TeriGriege https://twitter.com/PoweredByHope

Instagram: https://instagram.com/poweredbyhope

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

A Car Accident Saved My Life; An Interview With Lung Cancer Survivor Yovana Portillo


A Car Accident Saved My Life; An Interview With Lung Cancer Survivor Yovana Portillo

Yovana Maria Portillo is a young lung cancer survivor who was diagnosed with stage 1b lung cancer purely by accident.

During our conversation we discussed:

  • The story behind the accident that saved her life.
  • The details of her surgery and subsequent follow-ups.
  • The impact her disease had on her life.
  • The stigma associated with lung cancer and the burden of blame that many lung cancer patients and survivors face.
  • Where Yovana turned to when she needed support.
  • How she dealt with friends and family who were afraid to utter the word “cancer” in her presence.
  • The important roles exercise and spirituality play in her life

Connect with Yovana

Read her story herehttps://www.cancersupportcommunity.org/blog/2018/10/advocate-spotlight-yovana-portillo-phoenix-arizona

Follow her on Instagramhttps://www.instagram.com/azhikeryogirunner/

Connect with her on Facebookhttps://www.facebook.com/yovanamariaportillo

Follow her on Twitterhttps://twitter.com/asuxfin

 

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

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Interview With 15 yr. Cancer Survivor and Passionate Advocate Candace Henley


Candace first appeared on the podcast back in 2015. You can listen to that interview here.

Much has changed in Candace’s life since then. During our conversation we discussed:

  • How her life has changed 15 years since her original diagnosis.
  • The alarming number of questions she is asked during her advocacy work that reflect many people’s lack of knowledge about their own bodies.
  • The advocacy work she is doing, along with Dr. Andrew Albert, in the Chicago area.
  • The growth of her non-profit, The Blue Hat Foundation.
  • The reason why many people of color are distrustful of the medical community.

Links mentioned in this episode

The Blue Hat Foundation – https://www.thebluehatfoundation.org/

Call On Congress – https://fightcolorectalcancer.org/events/save-the-date-call-on-congress-2019/

Candace on Instagram – https://www.instagram.com/penelopepit_stop/

Candace on Twitter – https://twitter.com/colon_survivor

The Blue Hat Foundation on Twitter – https://twitter.com/BlueHats4colons

WE Have Cancer Links

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Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Lacuna Loft Provides Young Adult Cancer Resources No Matter Where You Are


Mallory Casperson - Founder and CEO

Lacuna Loft provides young adult cancer resources no matter where you are

Mallory Casperson is the CEO and founder of Lacuna Loft. A former aerospace engineer, Mallory was thrust into the cancer world after being diagnosed with Hodgkin’s lymphoma.

During our interview we discussed:

  • How her mother’s cancer diagnosis, and subsequently her own diagnosis, caused her to leave the aerospace industry and start a non-profit.
  • How Lacuna Loft began as Mallory’s blog about her experience as a young adult cancer survivor.
  • The three main challenges young adult cancer patients and survivors face; the lack of connections to people like them, the feeling of isolation and the need for validation.
  • The range of online support resources available for young adult cancer patients and survivors.

Connect With Lacuna Loft

On their website – https://lacunaloft.org/

YouTube – https://www.youtube.com/channel/UCu8vPgF5kkUv4–AeqsYQgg/featured

Instagram – https://www.instagram.com/lacunaloft/

Twitter – https://twitter.com/lacunaloft

Facebook – https://www.facebook.com/LacunaLoft/

 

WE Have Cancer Links

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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Interview With 5-yr. Breast Cancer Survivor and Cancer Scientist Noel Peters


Noel Roma Peters

Interview With 5-yr. Breast Cancer Survivor and Cancer Scientist Noel Peters

I had the pleasure of meeting Noel Peters in July of 2018 when I was invited to speak at the company where she works, Foundation Medicine. We quickly bonded after learning we were both Stage IV cancer patients.

During our conversation we discussed:

  • What it’s like living with cancer
  • Her experience of learning about her diagnosis and how she shared her cancer diagnosis with her children
  • The uncertainty around her being staged with Advanced Breast Cancer
  • What it’s like being a cancer scientist and a cancer patient at the same time and how this experience has impacted her approach to her job
  • The definition and importance of palliative care and how it shouldn’t in any way be confused with hospice care
  • The impact her diagnosis had on her marriage and her family
  • Her thoughts on the annual “pink-washing” of America every October during Breast Cancer Awareness Month.

To learn more about Foundation Medicine and the work they do listen to my interview with interview with Dr. Prasanth Reddy, Vice President of Medical Affairs: https://wehavecancershow.com/095

WE Have Cancer Links

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