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Archive | May, 2015

Choosing to Lead a Positive Life With AFAP, With Daniel Shockley

Daniel Shockley

Choosing a Positive Life With AFAP, With Daniel Shockley

Daniel Shockley is a veteran of the U.S. Navy. At the age of 50 he was diagnosed with AFAP, Attenuated Familial Adenomatous Polyposis. AFAP is a subtype of a condition known as Familial Adenomatous Polyposis (FAP), which causes an increased number of colon polyps, and therefore, an increased risk of colon cancer in the people who have it.

Though faced with life saving and life-altering surgery, Daniel has chosen to live a positive life.

My mindset from the onset can best be described as: I tend not to think about things I am unable to control; medical issues I am unable to control. What I can control is my positive attitude – Daniel Shockley

What I Learned From Daniel Shockley

  •  Understand as much as you can about your condition

    • Understanding your condition will help you adapt and will allow you to press on with your life.

  • Worrying doesn’t help.

    • In Daniel’s words “worrying didn’t cause my condition;  therefore,worrying will not make it go away.”

Daniel has made advocacy his life’s work. Here are the organizations that Daniel is working with:

The Colon Cancer Alliance

Fight Colorectal Cancer

Hereditary Colon Cancer Foundation

National Organization of Rare Disorders

Wound, Ostomy and Continence Nurse Society

United Ostomy Associations of America, Inc.

Chris4Life

Michael’s Mission

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Chris4LIfe Founder and President, Michael Sapienza

, Christine

The inspiration for Chris4Life, Christine Sapienza

Michael Sapienza founded Chris4Life in honor of his mother, Christine Sapienza, who lost her battle with colon cancer in 2009.

The mission of Chris4Life is:

To find a cure for colon cancer by funding and facilitating cutting edge research programs across the nation. To improve the lives of patients diagnosed with colon cancer by funding and developing programs to support patients and their caregivers. To increase awareness of the life-saving importance of early screening for colon cancer by using innovative strategies.

What I Learned from Michael Sapienza

  • One person can make an impact.

    • Chris4Life has grown and now sponsors major events across the country to raise money to support colon cancer research.

  • Within a few years, we will see colon cancer receive the national spotlight like other forms of cancer currently have.

Important Links Mentioned on the Show:

Colon Cancer Alliance Webinar: Dehydration: Causes, Impact On Your Treatment and What You Can Do – May, 20, 2015 7PM EST

 

UndyChicago Undy

 

 

 

 

Never too Young

The Chrs4Life Fabulous Event

 

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From Homelessness to Colon Cancer Advocate, With Candace Henley

Candace Henley

From Homelessness to Colon Cancer Advocate, With Candace Henley

Candace Henley says she was “Superwoman” prior to her colon cancer diagnosis. The mother of five children, she worked out at the gym, drove a bus for the Chicago Transit Authority and was involved in her church.

When she was diagnosed with stage IIB colon cancer the effects were devastating; not just physically, but also emotionally and financially. Her husband left her, she lost her job, her car and her home. Inspired by the care and support of many, particularly her children, she fought her way back.

In an effort to raise awareness about colon cancer in the African-American community, Candace created Blue Hat BowTie Sunday. In March of 2015, she was  recognized by the Zeta Phi Beta sorority as their Woman of the Year. Candace was also one of four women whose story was profiled in Women’sHealth Magazine.

What Candace Henley Learned From Surviving Colon Cancer

  • I learned there is no room for self-pity- (“Why should I fight it, I’m going to die anyway”). Who really knows when they are going to die? Those that love you want you to fight and if they could they would fight for you but, truth is “Your survivorship should not be more important to everyone but you!”

  • I learned that you will lose friends as result of fear and ignorance about what cancer is and no matter how many times you tell them they can’t get it if they touch you.

  • I learned that I am happier than I was before cancer. When you survive cancer, you see life in HD. Things seem brighter, smell better and feel better. The things you use to take advantage of somehow become more exciting and make you want to slow down and savor moments as long as you can.

  • I learned that laughter is healing and good medicine. I remember reading that laughter had healing properties and I was desperate to feel something other than pain and anger so, I started watching America’s funniest home videos and spending more time with family and friends.

  • I learned that LIVESTRONG is not as easy as it sounds.

  • I learned that I would have missed being a grandmother.

  • I learned I would become an advocate for others like me.

  • I learned that I would encourage others not only about making it day by day but, making it through life.

  • I learned that you will not be the person you use to be and you have to find your “New Normal”.

  • I learned that God does answer prayers.

  • I learned that cancer is not a punishment from God.

  • I learned to forgive myself for being angry and forgive others who hurt or left me when I needed them most.

  • I learned that cancer is an exclusive club that does not discriminate. People you might not otherwise meet from all walks of life become lifelong friends as a result of a cancer diagnosis.

  • I learned my purpose in life.

  • I learned to live my best life now

 

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Lynch Syndrome, and Genetic Testing and Counseling, With Georgia Hurst and Ellen Matloff

Georgia Hurst1

I Have Lynch Syndrome, Inc founder, Georgia Hurst

Georgia Hurst is the founder of I Have Lynch Syndrome, Inc. As stated on her website

The mission of I Have Lynch Syndrome, Inc., is to save lives through education and awareness raising about Lynch among the global medical community and the general public.

Ellen Matloff is the President and CEO of My Gene Counsel.   “My Gene Counsel will translate the jargon behind the latest breakthrough on the evening news and tell you what it really means for you and your family.”

During this podcast, Georgia and Ellen discuss the impact that Lynch syndrome can have on those affected by it and the importance of knowing your family medical history. The also educate us on the world of genetic testing and counseling.

What I Learned From Georgia Hurst and Ellen Matloff

  • Know your family medical history!

    • Speak with the older members of your family and create a family tree that lists as many family members as possible. List their age, any serious medical condition, and their age when they passed away, if applicable. Keep this document with other important documents.

  • If you have a tumor surgically removed, ask your doctor to order M.S.I. (Micro Satellite Instability) or immunohistochemistry testing on the tumor to determine if there are any genetic mutations.

  • Though not right for all cases, genetic testing should always be discussed with your oncologist. If you need assistance, or more information, visit the National Society of Genetic Counselors website, or contact My Gene Counsel.

Important Links:

IHaveLynchSyndrome.com:

IHLS

Find Georgia Hurst on Twitter: @SheWithLynch

My Gene Counsel

Find Ellen Hurst on Twitter: @MyGeneCounsel

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Founder of National “Dress in Blue Day,” Anita Mitchell

Anita Mitchell Isler - Stage 4 Colon Cancer Survivor

Anita Mitchell Isler

In this episode, I have the pleasure of interviewing Anita Mitchell Isler, a stage 4 colon cancer survivor and the woman who founded “Dress in Blue Day.” Anita is also the founder of  Colon STARS,  a non-profit organization who’s mission is to save lives by educating people on the importance of colorectal cancer screening.

Join me as Anita shares her story of beating stage 4 colon cancer and how that motivated her to work tirelessly to make a difference in the lives of people affected by colon cancer in the Seattle, Washington area and across North America.

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My Life With Cancer, With Lee Silverstein


Stage 4 colon cancer survivor - Lee SilversteinWelcome to the inaugural episode of the Colon Cancer Podcast. Join me as I share the story of how cancer has been a part of my life, for most of my life.

Lee Silverstein introduces the listeners to The Colon Cancer Podcast. Lee will take you through his incredible journey with cancer, which began when he was a 5-year-old Wilms’ Tumor patient, all the way through his battle as a stage 4 colon cancer survivor.

Lee shares with the listeners:

  • How he was twice diagnosed with cancer, once as a child and once as an adult, without showing any signs or symptoms.

  • His experience with the side-effects of chemotherapy and how he managed the effects.

  • How exercise, and a positive attitude, helped him through his colon cancer treatment.

 

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