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Discussing the Long-Term Effects of Childhood Cancer Treatment With Susan Strong


Susan Strong was first diagnosed with cancer shortly after graduating high school when she was diagnosed with Hodgkin’s Lymphoma at the age of 17. Like many childhood cancer survivors she was unaware of the health complications she would face many years later, including heart-valve replacement surgery and a breast cancer diagnosis, as a result of her treatment for her Lymphoma.

During our conversation she shared:

  • The emotional struggle she faced as a childhood cancer patient.
  • How she coped with both a heart-valve replacement and breast cancer diagnosis within a short time period.
  • Why she decided to walk away from her career as a classroom teacher and pursue her passion.
  • The advocacy and support work she’s doing for cancer patients and survivors and her long-term goals.
  • How post-traumatic stress disorder (PTSD) manifested itself and how she managed its effects.

Connect With Susan, Links Mentioned on the Show

Check out her blog – https://stronglifenow.wixsite.com/stronglifenow

The American Heart Association’s profile on Susan – https://newsarchive.heart.org/strong-to-celebrate-her-valversary/

Follow Susan on Instagram – https://instagram.com/livinglifeafterlymphoma

Follow Susan on YouTube – https://www.youtube.com/playlist?list=PLBw9pWNLQth953VjT48qlnRGiZECCbjj9

Have Susan speak to your organization – https://speakerhub.com/speaker/susan-strong

National Cancer Institute, Cancer Screening – https://www.cancer.gov/about-cancer/screening/patient-screening-overview-pdq

TAVR (Transcatheter aortic valve replacement) – https://www.mayoclinic.org/tests-procedures/transcatheter-aortic-valve-replacement/about/pac-20384698

EMDR (Eye Movement Desensitization and Reprocessing) – https://www.emdr.com/what-is-emdr/

 

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

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Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

Living An Active Life With An Ostomy; With Colorectal Cancer Survivor Doug Dahlmann


Doug Dahlman

Doug Dahlmann leads a very active life despite his ostomy. That wasn’t always the case; however. When he awoke from his surgery for stage 3 colorectal cancer in 2010 he was devastated to learn he was left with a permanent ostomy. He was “filled with anxiety, depression and uncertainty.”

Adjusting to life as an ostomate took time, but within a few months he achieved his goal of completing a 100-mile century bike ride.

During our interview we covered:

  • Why he wanted to take on the physical challenge of hiking the Pacific Crest Trail and the unique challenges doing so with an ostomy.
  • The emotional challenge of accepting his ostomy and how he moved from “denial” to embracing his new life.
  • Navigating the social and dating scene with an ostomy.
  • Why he decided to compete in a body-building competition.
  • What’s next for him on his list of adventures.

Connect with Doug

His story featured on the Colon Cancer Coalition website: https://coloncancercoalition.org/2018/10/06/an-ostomy-life-unlimited/

On Instagram – https://instagram.com/pacnwtrekker

On Facebook – https://www.facebook.com/doug.dallmann

WE Have Cancer Links

Subscribe to the show – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

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Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

Supporting The Cancer Community With His One Percent Podcast, With Truitt Taylor


Truitt Taylor – WE Have Cancer

The WE Have Cancer community mourns the passing this week of Chere Garcia. Chere was a guest on the podcast in 2016. You can listen to our conversation at https://wehavecancershow.com/026. May her memory serve as a blessing to her family, friends and all who loved her.

In this episode I had the pleasure of speaking to fellow colon cancer survivor and fellow podcaster Truitt Taylor. During our interview we discussed:

  • The meaning behind “One Percent” and why he created the podcast.
  • Why he believes it’s important for people to tell their story.
  • The importance of creating a legacy.
  • How he came to be diagnosed at the age of 31.
  • How cancer helped him revaluate his personal and professional priorities.
  • His long-term goal for the One Percent Podcast.

Connect With the One Percent Podcast

Listen and subscribe to the One percent Podcast – https://itunes.apple.com/us/podcast/one-percent-podcast/id1435009129?mt=2

Email Truitt – info@onepercentpodcast.com

Follow the One Percent Podcast on Instagram – https://instagram.com/onepercentpodcast

Follow One Percent Podcast on Twitter – https://twitter.com/1percentpodcast

Like One Percent Podcast on Facebook – https://www.facebook.com/onepercentpodcast/

Listen to Truitt’s Interview With Lee – https://open.spotify.com/episode/1rr2Yi4O0WJSZgcjTrTooS

WE Have Cancer Links

Subscribe to the show for free – https://pod.link/wehavecancer

Follow WE Have Cancer on Social Media

Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

The Dana-Farber Young-Onset Colorectal Cancer; Interview With Dr. Kimmie Ng and Pat Beauregard


The Dana-Farber Young-Onset Colorectal Cancer; Interview With Dr. Kimmie Ng and Pat Beauregard

Dr. Kimme Ng and Pat Beauregard

The Dana-Farber Cancer Institute opened the doors to its new Young-Onset Colorectal Cancer Center this past week. In anticipation of this exciting news I interviewed Dr. Kimmie Ng, Founding Director, and young-onset survivor, Pat Beauregard.

During our interview we discussed:

  • The goals of the Dana-Farber Young-Onset Colorectal Cancer and why it was created.
  • How Pat came to be diagnosed with Young-Onset Colorectal Cancer at the age of 29
  • The challenges in raising awareness around young-onset colorectal cancer and how it often leads to a late-stage diagnosis.
  • The three main areas of focus of the center
  • Where Pat currently is with his treatment

WE Have Cancer Links

Subscribe to the show:

Links Mentioned In the Show

Dana-Farber Young-Onset Colorectal Cancer Center – https://www.dana-farber.org/young-onset-colorectal-cancer-center/

Dr. Kimmie Ng – https://www.dana-farber.org/find-a-doctor/kimmie-ng/

Connect with Pat on Facebook – https://www.facebook.com/pat.beauregard.79

Follow Pat on Instagram – https://instagram.com/pbo15

Follow WE Have Cancer on Social Media

Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

Advocacy and Faith Has Helped Carole Motycka Outlive Her Initial Cancer Prognosis


Carole Motycka – WE Have Cancer

In our first episode supporting 2019 Colon Cancer Awareness Month, Carole Motycka talks about how advocacy and faith has helped her far outlive her doctor’s initial prognosis.

During this interview we talked about:

  • How a minor hiking accident led to her diagnosis of stage 4 colon cancer and Juvenile Polyposis Syndrome (JPS).
  • Her doctors giving her a 6-11 month prognosis, three years ago.
  • The treatment and support she received from the Cleveland Clinic.
  • Why she needed a liver transplant after doctors finding No Evidence of Disease.
  • How a liver donor was found and her relationship with this fellow church member.
  • The role her faith played in her diagnosis, recovery and her life going forward.

Connect With Carole

Instagram: https://instagram.com/swtcareline

 

WE Have Cancer Links

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Follow WE Have Cancer on Social Media

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Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

The Big Surprise


Host Lee Silverstein, shares surprising news and it’s definitely not the surprise he was expecting.

 

WE Have Cancer Links

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Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

Surviving Cancer Through Faith, Love and Writing With Nicole Body


Nicole Body – WE Have Cancer

Nicole Body has been surviving cancer through faith, love and passion for writing. A Stage 3 sarcoma survivor, Nicole chronicled her cancer experience through her blog; sparklysurvivor.com.

During our conversation we discussed:

  • How she came to be diagnosed
  • The importance of exercise and the role it plays in her cancer recovery
  • Why presence and not taking things for granted is incredibly important to her
  • Why she chose to leave social media during her treatment and focus on writing
  • The important role her husband, Wes, has played in her life and her cancer experience
  • The crucial role her faith plays in her life and in her recovery
  • How she handles friends and family who “don’t know what to say” when it comes to cancer
  •  The poor relationship she had with food and how she overcame it and became more focused on nutrition

Connect with Nicole

Her blog – https://sparklysurvivor.com/

On Instagramhttps://instagram.com/sparklysurvivor

On Twitterhttps://twitter.com/sparklysurvivor

On Pinteresthttps://pinterest.com/sparklysurvivor

On Facebook – https://www.facebook.com/SparklySurvivor/

WE Have Cancer Links

Subscribe to the show:

Follow WE Have Cancer on Social Media

Like our Facebook page – https://www.facebook.com/wehavecancershow/
Join our private Facebook group – https://www.facebook.com/groups/wehavecancershow/
Follow us on Twitter – https://twitter.com/wehavecancerpod
Follow us on Instagram – https://instagram.com/wehavecancerpod

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast – https://wehavecancershow.com/guest

Email Lee

 

 

 

Rehabbing From Cancer, With 9-Year Survivor Michele Longabaugh


Michele Longabaugh is a 9-year stage 4 cancer survivor. She was diagnosed in 2010 with anal cancer and has far exceeded her 3-year “expiration date,” as she described it.

During our conversation we discussed:

  • The challenging treatment she went through
  • The stigma associated with anal cancer
  • The long term side effects of her treatments and how she’s managing them
  • What she meant when she said “I wish they would have treated me like I was going to survive.”
  • Why she feels like she’s now “living the dream” as a cancer survivor.
  • The fact that many oncologists and surgeons fail to address the impact of cancer on the sexual function of cancer survivors and patients and how she’d like this to change.
  • How she wishes patients would be offered “cancer rehab.”
  • How surviving cancer has changed her.

Links Mentioned In The Show

Interview with Dr. Sage Bolte – https://wehavecancershow.com/069

52 Shades of Blue – http://www.52shadesofblue.com

Michele’s book If You’re Not Laughing, You’re Dying – http://www.52shadesofblue.com/her-book/#

Follow Michele

Her blog – http://ihavebuttwhat.tumblr.com

On Instagram – https://instagram.com/pollyannalife

On Twitter – https://twitter.com/crazyasscancer

WE Have Cancer Links

Subscribe to the show:

Follow WE Have Cancer on Social Media

Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest

Email Lee

The Colon Club – Providing Support and Healing to Those Touched By Colorectal Cancer

The Colon Club – WE Have Cancer

The guests for this episode were Phoung Ly Gallagher, Executive Vice President, and Kristina Smith, Vice President of Communications for The Colon Club.  The Colon Club provides resources for those touched by colorectal cancer.

During our conversation we discussed:

  • The story behind the beginning of The Colon Club
  • The Colon Club’s Four pillars: Colon Talk, The Kimberly Fund, the blog and the On The Rise magazine.
  • Kristina’s own experience as a recipient of The Kimberly Fund
  • Phuong’s connection to colorectal cancer
  • The upcoming Colon Camp retreat and the life-changing experiences attendees can expect.

Apply to Attend the 2019 Colon Camp – Deadline is February 1, 2019!

To apply visit: https://wehavecancershow.com/colonclub

Links Mentioned In This Episode

Colon Club – http://colonclub.com

Colon Talk – http://coloncancersupport.colonclub.com/viewforum.php?f=1

The Kimberly Fund – https://colondar.wufoo.com/forms/r1lbim8y1rxx58x/

On The Rise Magazine – http://colonclub.com/on-the-rise/

Our First Interview With Kristina Smith – https://wehavecancershow.com/054

Our Interview With Diana Sloan – https://wehavecancershow.com/077

Our Interview With Riley Castro – https://wehavecancershow.com/061

Our Interview With Nikki Moore – https://wehavecancershow.com/090

The Five Star Retreat In Nunnelly, Tennessee – http://www.fivestarretreat.com

Connect With The Colon Club

On Instagram – https://instagram.com/colonclub

On Twitter – https://twitter.com/colonclub

On Facebook – https://www.facebook.com/colonclub/

Visit Their Website – http://colonclub.com

WE Have Cancer Links

Subscribe to the show:

Follow WE Have Cancer on Social Media

Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest

Email Lee

Dean Hall Is A Cancer Survivor Who’s Swimming In Miracles


Dean Hall is Swimming In Miracles

Dean Hall is the first person in history to swim the entire 184 miles of Oregon’s Willamette River. He accomplished this feat in June of 2014 while he still had active leukemia and lymphoma to prove to cancer patients around the world that you don’t have to give up your dreams or your drive simply because you received a diagnosis. Now, cancer-free he continues to go to great lengths to raise money for cancer research and spread his inspirational message of healing and hope around the world.

During our interview we discussed:

  • How cancer played a significant part of his life before his diagnosis.
  • The meaning of Swimming in Miracles and how water has played a significant role in his physical and emotional healing.
  • How a quote from Albert Einstein helped him chart a new course with his life.
  • The role faith has played in his life.

Connect With Dean

His website, Swimming in Miracleshttps://www.swimminginmiracles.com

On Instagram: https://instagram.com/swimminginmiracles

On Twitter: https://twitter.com/swimminginmiracles

Links mentioned in the show

Forest bathinghttp://www.shinrin-yoku.org/shinrin-yoku.html

Wim Hofhttps://www.wimhofmethod.com

The book Blue Mindhttps://www.amazon.com/Blue-Mind-Surprising-Healthier-Connected/dp/0316252115

WE Have Cancer Links

Subscribe to the show:

Follow WE Have Cancer on Social Media

Join our private Facebook group- https://www.facebook.com/groups/wehavecancershow/

Know someone touched by cancer who has an inspiring story?

Nominate a guest to appear on the podcast- https://wehavecancershow.com/guest

Email Lee

Lee@wehavecancershow.com

 

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